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Scisn.org

About the Rick Hansen Institute
A world without paralysis after spinal cord injury

What We Do:
• Lead collaboration across the global spinal cord injury community including SCI patients, researchers, clinicians and other stakeholders. • Provide resources and sharing advancements in infrastructure and knowledge developed in Canada with like-minded institutions in the US, Australia (Queensland University), Israel (Hebrew University), and China, among others. • Support the identification, development and validation of the most promising discoveries in SCI treatment and care worldwide into new treatments and adoption of best practices. • Manage, and grow, the Rick Hansen SCI Registry to collect and analyze valuable data on SCI and to support the development of multicentre clinical trials. Why We Do It:
• To reduce the incidence and severity of paralysis after SCI. • Improve health care outcomes. • Reduce long-term costs. • Improve quality of life for those living with SCI.
Examples of RHI Collaboration:
• RHI connects clinicians, researchers and their institutions across the country via Registry data-sharing and through multi-centre clinical trials and 60+ research projects—in acute care response, secondary health complications and best practice implementation. • RHI helps connects the Canadian SCI research community to other international efforts through expansion of the Registry (Queensland, Hebrew University) and flagship research projects (e.g. Minocycline) • To accelerate progress in these areas, RHI is working with partners across Canada, and increasingly internationally, to encourage Canadians with SCI to increase their participation in research and clinical trials. Examples of RHI Projects

• RHI has developed a Canada-wide Registry to collect and analyze valuable data on SCI
that is already established in 30 hospitals and rehabilitation centres in Canada, and is
now establishing international sites in Australia (Queensland University) and Israel
(Hebrew University).
The Access to Care and Timing Project aims to understand the interaction of the clinical
and administrative processes that affect the care for persons sustaining a traumatic SCI. A computer simulation model will be developed to examine the effect of implementing specific policy initiatives and clinical practice guidelines related to the ‘setting’ and the ‘timing of interventions’ on system and patient outcomes. • The Minocycline Project is a study that expands upon a pilot study that examines the
use of intravenous minocycline, which has shown neuroprotective effects, in acute spinal cord injury (within 12 hours after injury), and suggested improved neurological and functional outcomes for patients with incomplete cervical injuries (AIS C and AIS D). • The Spinal Cord Injury Community Survey Project identifies the needs of people with
spinal cord injury, and then examines the relationship among these needs with: access/barriers to service utilization; outcomes (e.g. secondary complications, participation, quality of life); and personal (e.g. age, gender, injury severity, etc.) and environmental (e.g. location of the residence, unemployment rate, etc.) factors. • Hospital Accreditation for spinal cord injury services in Canada through Accreditation
Canada, aims to improve the quality of care in health care organizations in Canada
through a relevant and responsive accreditation program that will be implemented in
2012.
CMA (Canadian Medical Association) RHI, in partnership with the
CMA and Queen's University, is supporting the implementation of Actionable Nuggets –
short, focused care guidelines that physicians can use immediately to provide better
primary health care.
Knowledge Mobilization: RHI is partnering with the
in order to coordinate the Best Practices Implementation activities in the areas of bladder management, pain, and pressure ulcers. • Spinal Cord Injury Rehabilitation Evidence is an online resource that synthesizes
the research evidence underlying rehabilitation interventions to improve the health of people living with SCI, and is intended to translate existing knowledge to health professionals to inform them of best practices. The Rick Hansen Institute is supported through financial contributions from Health Canada,
Western Economic Diversification, various provincial and territorial governments and the Rick
Hansen Foundation.

For more information, please contact:
Dan Maceluch
Director, Marketing and Communications, The Rick Hansen Institute
Tel: 604.707.2114

web www.rickhanseninstitute.org | telephone 1.604.707.2100 | ema

Source: http://www.scisn.org/rhi2013new/images/stories/RHI_Backgrounder_Dec_14.pdf

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Hallam Stevens Date of birth: 30thJuly, 1979 Email: Cell phone: +65 9674-4600 Office Phone: +65 6790-5691 Citizenship: Australia, Great Britain. Publications: Books: Life out of sequence: bioinformatics from the ARPANET to post-genomics. [Under contract, University of Chicago Press] Biotechnology and society [Under contract, University of Chicago Press] Postgenomics (wor

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