PDSG newsletter Welcome to this month’s Pick’s Disease Support Group Newsletter • Peter Moore tells us all about the
• Events Diary - make sure you book February 2008 • Duncan Hutchison updates us on • Julian Taylor & Margaret Rees www.pdsg.org.uk ANNUAL SEMINAR PICK’S DISEASE SUPPORT FRONTOTEMPORAL DEMENTIA (including Pick’s disease) STUDY DAY WOLFSON LECTURE THEATRE NORWEGIAN CHURCH ARTS CENTRE NATIONAL HOSPITAL FOR NEUROLOGY HARBOUR DRIVE, CARDIFF BAY, AND NEUROSURGERY QUEEN SQUARE, LONDON WC1N 3BG 18th MARCH 2008 26TH MARCH 2008
An opportunity for all those with a personal or professional
So many kind, distinguished speakers are giving their time to
interest in frontotemporal dementias (Pick’s disease) to
get us up to date with what is happening. Topics include
learn more about the conditions and to discuss best
descriptions of the illnesses, genetics, research, supporting
children as well as Professor Fox being willing to answer any question that we throw at him.
We will also hear from carers and members of the PDSG.
Pick’s Disease Support Group Carol Jennings10.40 Clinical overview of Pick’s disease Robin Corkhill
Please come and support the PDSG. Registration is at 9.00
11.10 Language problems in Pick’s disease
and the lectures are from 9.30 until 4.30pm. There will be a
break for lunch and sandwiches etc. can be bought locally.
11.40 Behavioural problems in Pick’s disease What happens and how to cope Tony Bayer
The Registration fee is £40 for professionals and £25 for
1.30 Genetics, research and new treatments Huw Morris
For further details and inscription please contact Carol
2.00 What help is available? – (speaker about benefits
Jennings e-mail: [email protected] or phone: 0845
services, patient support, carer support etc.)
2.30 A carer’s perspective3.00 Questions and close
For further details contact Mrs Heather Copeland email: [email protected], phone: 029 20716977 or fax No. 029 20704244
Val Bywater and Bob – No Whingeing
done to make life a little less difficult.
doors and saying I don’t love him.
laughter, live cello and tasty food.
he has, quite literally, no level of reasoning or logic left. Dementia,
achieving. She deserves a PDSG gold medal!Margaret Rees Julian Taylor
along with Heika, Vida, Jeff, Kathy, Sue
Peter Moore.
experience. My wife was diagnosed with PPA in
1.2.2 Mobility component
Applications should be made as soon as possible, as claims qualify from the
2. CARERS ALLOWANCE 2 . 1 M a x i m u m B e n e fi t : £48-65/week THE COSTS OF CARE
disability’, who is already in receipt of
2.2 Adult de penda nt ’s addition A L L O W A N C E S 1.1 Attendance Allowance BENEFITS (For patients aged over 65 1. ATTENDANCE ALLOWANCE o r D I S A B I L I T Y L I V I N G 3.INCAPACITY BENEFIT AND ALLOWANCE STATUTORY SICK PAY
actually receiving the required care. The Benefits and Health Information Service This free Current Rates (per week) 3.1 Statutory Sick Pay 1 . 2 D i s a b i l i t y Allowance 3.2 Incapacity Benefit 1.2.1 Care component (per Fully funded NHS care (also known as Continuing NHS See: Benefits and Health Information Direct payments Duncan Hutchison
Scotland - Mrs Elaine Anderson 01292 442 273
(Contact for Carers of Alcohol Related Dementia)
Mersey & North West - Mrs Mary Dawber
Carol Jennings - Adviser 1 Honeybourne Close, Mount Nod,