My lecture outline
o Describe a brief history of the development of hospice care o Describe the hospice philosophy of care o Describe the referral process o Describe hospice services o Describe reimbursement in hospice care o Recognize hospice myths
• Course outline based on Objectives:
o Describe a brief history of the development of hospice care, especially
Dame Cicely Saunders, MD and Elizabeth Kubler-Ross, MD
• St. Christopher’s Hospice – 1967 – birthplace of modern
o Dame Saunders died at St. Christopher’s July 14,
• First hospice in United States – 1974
• Received government grant to provide hospice care
• Bridge Program – home care with palliative focus and
“bridge” to hospice when patient/family is ready
• VNA was asked to assist Medicare in writing hospice
• Hospice is the only entity for which Medicare pays 100%
o Describe the hospice philosophy of care
• Emotional, physical, social, and spiritual comfort
• The dying person & his/her family as the unit of care
• Emphasis on comfort not cure; benefit vs. burden;
Quality of Life (“majority of patients are over treated with
technology but pain is under treated”)
• W.H.O. definition: compassionate care directed at
improving quality of life for people with life-limiting illness
My lecture outline
not responding to curative treatment; encompasses last
2 – 2.5 years of life (hospice care – usually refers to last 6 months of a person’s life)
• “You matter to the last movement of your life, and we
will do all we can, not only to help you die peacefully, but to live until you die”.
• Physician discusses hospice with pt/family
• Pt/family wishes to further pursue hospice options
• Writes Order for “hospice consult”
• Order sent to social worker per hospital policy
• Confirms pt/family wishes to pursue hospice services
• Notifies hospice agency chosen by pt/family
• Provides additional support to pt/family
• Completes evaluation and intake process
• Meets with pt/family to discuss hospice services
• Life expectancy of less than 6 months
• Desire to have treatment focused on comfort rather than
• Some may require a caregiver present in the home
• Cancer diagnosis with life expectancy of less than 6
My lecture outline
• Atherosclerotic Cardiovascular Disease (ASCVD)
• Physical – pain, respiratory distress, fever, nausea and
vomiting, hemorrhage, oral-pharyngeal secretions, etc.
• Emotional – anxiety, fear, restlessness, agitation, denial,
• Spiritual – lack of or faltering spiritual aspect of life, need
• Social – unresolved issues, life reviews, “still grandma”
• Routine home care, wherever the patient lives
o Home o Nursing home o Residential home
• Inpatient care, usually in a contracted hospital
o Patient is actively dying o Acute symptom management o Not covered by Medicaid, considered duplication of
• Respite care, in a contracted nursing home facility
o To provide a break or rest for the family and/or
o Medicaid covers a total of 5 days for entire time
• Continuous care, wherever the patient lives
o Crisis care for acute symptom management o For other crisis within the home
• Medications related to hospice diagnosis and symptom
• Specialty and therapy services needed for symptom
• Provided by professional team primarily in the home
• Personalized, comprehensive services based on patients
My lecture outline
o Physician o Registered nurse o Medical social worker o Chaplain o Home health aide o Volunteers o Bereavement coordinator
Routine inpatient hospice orders (discuss and provide handout)
• Admit to VNA Inpatient Hospice per services of John Doe,
• Diet: “NPO with mouth care q6h and prn comfort”; or
“Comfort Foods as long as no dysphagia and mouth care
• Maintain foley per hospital policy – or – May insert and
• Reposition q4h and prn comfort (I usually do q4h for
dying pts instead of q2h because they seem to remain more comfortable and it causes less agitation and/or
• Maintain current O2 protocol; if there isn’t current O2,
• No O2 sats or lab draws, nor any other type of
diagnostics, procedures, and/or consults.
• If they have a peripheral IV, “Do not re-site IV and DC
for s/s of infection and/or infiltration”
• If they have a PICC, central line, or port, “Maintain –
whichever one it is – per hospital policy”
• If they have a morphine or dilaudid drip, “Continue
morphine drip at (the current rate) and titrate to
• Morphine 1 – 4 mg IVP q2h prn pain/sob/respiratory
distress and titrate to comfort (Presby cannot give 5mg IVP on the floor, pt must be in ICU for that dosage)
• Or – Dilaudid 1 – 2 mg IVP q2h prn . . . . . . .
• Ativan 1 – 2 mg IVP q3h prn restlessness/agitation and
titrate to comfort (or, substitute haldol if ativan isn’t
• Phenergan 12.5 mg IVP or 25 mg supp q4h prn n/v; or,
• Tylenol 650 mg supp, 1 PR q4h prn fever
• Atropine Opth Gtts 2 gtts SL q2h prn oral-pharyngeal
My lecture outline
• Scopolamine Patch 1 TD behind ear and change q72h
• If they have a peripheral IV site that we might lose,
“Roxanol 20mg/ml, 5 – 20 mg SL q2h prn
pain/sob/respiratory distress and titrate to comfort” and “Lorazepam Intensol 2mg/ml, 1 – 2 mg SL q3h prn
restlessness/agitation and titrate to comfort”
• If they have IVF’s, slow them to a TKO of 10 ml/hr
• If they have PEG or NG feedings, for the family’s
emotional sake, slow them to ½ of current rate and then DC the following day
• May suction prn, but only if Atropine and/or Scopolamine
are not controlling oralpharyngeal secretions
• Please call VNA Hospice with any change in condition and
when pt expires 214-689-2648. TO/Dr.JDoe/RShaw,RN,VNAHospice
o Describe reimbursement in hospice care
Per diem Medicare Medicaid Insurance Community Funds
• Hospice is for any end-stage disease
• Hospice care is a type of care, not a place
• Hospice cares for patients where they live
• Hospice works best when there is time to build trust and
• Recent study shows patients on hospice care live longer
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